hATTR Amyloidosis: Know Your Genetic Health History - Virtual Presentation

Details

When:
April 29, 2021 @ 6:00 pm
Cost:

The 100 Black Men of Phoenix, Black Health Matters and Alnylam are partnering to provide a free virtual education presentation about hereditary ATTR (hATTR) amyloidosis – a rare, inherited, rapidly progressive disease caused by a gene change or mutation that results in the build-up of a protein called transthyretin (TTR).

hATTR Amyloidosis: Know Your Genetic Health History

Date: Thursday, April 29

Time: 6:00 PM Pacific Daylight

Approximately 1 in 25 (4%) of African Americans have a certain genetic mutation associated with hATTR amyloidosis. Symptoms of hATTR amyloidosis vary and can include weakness, numbness and burning pain in the hands and feet, carpal tunnel syndrome, chronic digestive issues, and heart disease.

This Program Will Cover:

  • Disease Overview
  • Genetics and Inheritance
  • Resources and Support

This program is intended for people interested in learning about hATTR amyloidosis, including individuals diagnosed with hATTR amyloidosis, their families, and caregivers.