The 100 Black Men of Phoenix, Black Health Matters and Alnylam are partnering to provide a free virtual education presentation about hereditary ATTR (hATTR) amyloidosis – a rare, inherited, rapidly progressive disease caused by a gene change or mutation that results in the build-up of a protein called transthyretin (TTR).
hATTR Amyloidosis: Know Your Genetic Health History
Date: Thursday, April 29
Time: 6:00 PM Pacific Daylight
Approximately 1 in 25 (4%) of African Americans have a certain genetic mutation associated with hATTR amyloidosis. Symptoms of hATTR amyloidosis vary and can include weakness, numbness and burning pain in the hands and feet, carpal tunnel syndrome, chronic digestive issues, and heart disease.
This Program Will Cover:
- Disease Overview
- Genetics and Inheritance
- Resources and Support
This program is intended for people interested in learning about hATTR amyloidosis, including individuals diagnosed with hATTR amyloidosis, their families, and caregivers.